AmbryShare Restores Genes to the Public Domain

Posted in Articles, Health/Medicine/Genetics, Law, Media Archive, United States on 2016-04-01 21:24Z by Steven

AmbryShare Restores Genes to the Public Domain

The Huffington Post
2016-03-29

Amal Cheema, Biochemistry and Political Science Student
Wellesley College, Wellesley, Massachusetts

“As a stage four cancer survivor, I find it shocking that public and private laboratories routinely lock away vital genomic information. That practice is delaying medical progress, causing real human suffering, and it needs to stop.” —Ambry Genetics CEO and founder Charles Dunlop

In its purest form, science seeks to determine how the world works and endeavors to improve the human condition. Yet, the current culture of research undermines this value-system, as institutions across the nation look for ways to capitalize on discoveries. The commodification of information, particularly of the genome, hinders innovation and prevents the discovery of novel drugs and cures., researchers can either seek revenue for their underfunded research or ensure the accessibility of scientific knowledge, but they can’t do both.

It’s not clear whether academic solidarity will prevail, universities increasingly rely upon licensing revenues and keep information proprietary. Although genes can no longer be patented in the U.S. due to the 2013 Supreme Court case, Association for Molecular Pathology et al. v. Myriad Genetics, most researchers perceive little benefit in sharing raw data. They silo their work and therefore, hamper innovation. The solution to this roadblock lies in the new, remediating, and open-access genomic libraries.

Ambry Genetics (Ambry), a leading genetics company, recently revealed its bypass to closed-door labs and patented information. It created a genomic library, AmbryShare, making the DNA data of 10,000 people available online to the public. And it’s the first private company to do so. While Ambry retains copyright, researchers now can easily download the data for free and investigate the genetic determinants of disease…

…Yet AmbryShare is not without its critics. Some fear that the database will lead to false positives and privacy breaches. Bioethicists like Dorothy Roberts of UPenn Law worry about false positives, such as race-specific gene differences. Roberts asserts that society has politically constructed race without a biological basis, and that researchers could support racism by misattributing differences in the genome as evidence of race. Scientists can address this concern by removing the race question from patient profiles…

Read the entire article here.

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I told my reflection, with the impossible hubris of a child, that white boy will never be me. I wasn’t, I decided in the basement of our rented duplex on Dwight Drive in Madison, going to be made to live THAT lie.

Posted in Excerpts/Quotes on 2016-04-01 21:02Z by Steven

I told my reflection, with the impossible hubris of a child, That white boy will never be me. I wasn’t, I decided in the basement of our rented duplex on Dwight Drive in Madison, going to be made to live that lie. I would decide what and who was important to me and become who and whatever that entailed. Call it pride. That decision was startlingly clear to me then. Comprehension of the complex forces that compelled that confrontation lay, however, beyond me, far ahead. I was a child; I had no idea what it would mean to me and those who would come into contact with me over the decades. Soon I’d begin to learn about that; I’m still learning.

Ed Pavlić, ““We Called That Touch”,” Boston Review, March 28, 2016. https://bostonreview.net/us/ed-pavlic-we-called-that-touch-race-american-experience.

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Among A Race Of Others: An Overview Of Western Racial Classification And Colourism

Posted in Articles, Census/Demographics, Media Archive, Social Science on 2016-04-01 20:55Z by Steven

Among A Race Of Others: An Overview Of Western Racial Classification And Colourism

Media Diversified
2016-04-01

Anthony Anaxagorou

Recently, a friend asked what makes someone a ‘person of colour’. For many White people and for many people of colour too, the term can seem strangely ambiguous. The ongoing refugee crisis has seen thousands of displaced people trying to enter Europe from the Middle East or East Africa adding yet another dimension of complexity to race politics.

My friend argued that people of colour can only be Black or Asian because Levantine and Middle Eastern people could in places pass for White, if Whiteness was simply measured by skin colour. He remarked how many Syrians had blonde hair and blue eyes; the same went for Northern Afghan, Lebanese and Palestinian groups. He mentioned how half of Turkey was geographically in Europe and its history with Greece, then claimed Cypriots consisted of either Greeks (from Greece) or Turks (from Turkey), refusing to acknowledge them as a densely heterogeneous race…

…Equal opportunity forms ask people to specify their ethnicity yet fail at being inclusive. I myself am not White, nor am I Black or Asian. I am not mixed-race either – that’s if mixed-race is assumed as being half African or Asian and half European. I am Cypriot so throughout my life I’ve had to tick ‘other’. On paper I’ve always lived among a race of ‘others’. In 2011 British Arabs were officially recognised in the UK census but still not many forms feature the option. Another misleading point here is that aside from the Arabs of Arabia there is no such racial group with the association being more linguistic; however, it’s become an easy point of aggregation…

Read the entire article here.

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Synagogues Need to Welcome and Celebrate Jewish Diversity

Posted in Articles, Judaism, Media Archive, Religion, United States on 2016-04-01 20:16Z by Steven

Synagogues Need to Welcome and Celebrate Jewish Diversity

Tablet
2016-03-31

MaNishtana

MaNishtana is the psuedonym of Shais Rishon, an Orthodox African-American Jewish blogger, editor-at-large at JN Magazine, and author of Thoughts From A Unicorn and Fine, thanks. How are YOU, Jewish? Follow him on Twitter @MaNishtana.

Thoughts on the importance of the updated list of ‘Welcoming & Diverse Synagogues’ curated by Shirley Gindler-Price, the former president of the Jewish Multiracial Network

This week, Shirley Gindler-Price, the former president of the Jewish Multiracial Network, released an updated compilation of temples and synagogues across the denominational spectrum considered to be welcoming of Jews of diverse ethnic and racial backgrounds, and have diverse membership in their pews. Gindler-Price, who is also founder of the Black German Cultural Society, first published the “Welcoming & Diverse Synagogues” list while with JMN, and she has continued to do so because, as the post says, “every Jew needs to feel connected and every Jew needs to feel at home.” And amen to that.

The Welcoming & Diverse Synagogues list continues to be of the utmost importance by virtue of the fact that there is very real need for prayer spaces for Jews of Color who want to be Jewishly and religiously active and present, but don’t want the outright prejudices or inadvertent microaggressions that may come along with it (Judaism, as I write about constantly, is unfortunately no stranger to racial insensitivities.)…

Read the entire article here.

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Blanket Fort Chats: Game Making With Meagan Byrne

Posted in Articles, Arts, Canada, Interviews, Media Archive, Native Americans/First Nation, Women on 2016-04-01 19:27Z by Steven

Blanket Fort Chats: Game Making With Meagan Byrne

FemHype: the safe space for women & nonbinary gamers
2016-04-01

Miss N (Nicole Pacampara)

Blanket Fort Chats” is a weekly column featuring women and nonbinary game makers talking about the craft of making games. In this week’s post, we feature Meagan Byrne, a Toronto-based Game Design student currently working as a Peer Mentor for her school’s Aboriginal Initiatives office and an active member of her school’s Aboriginal Student Group. She hopes to create games that reflect her Métis/Cree roots and bring new stories to video game players.

Miss N: Can you tell us a little bit about your background and how you got into making games?

Meagan: I actually started out in the live production/theatre field doing lighting design and event planning, but then the recession hit and I couldn’t find full-time work anymore. As my last contract was starting to wrap up, I took a really hard look at the job market. It was clear that if I stuck with this career, I was most likely never going to be able to rise above the poverty line. So I looked at what market was growing, and lo and behold, I saw the gaming industry!…

Miss N: You’ve previously described Wanisinowin as a game about “being lost or unsure of your place in the world.” What drew you to this theme?

Meagan: I wasn’t told straight up that I was native until I was at least a pre-teen. It wasn’t really a shock, it was more of a “that makes sense” thing. What was hard was the rejection from the native community my aunt brought me to. Almost right away I was dismissed because my skin was too light or I because I didn’t grow up on a reservation. I didn’t feel comfortable going to “native” events or Friendship Centres. Was I going to be thrown out of there, too? My mother was not interested in embracing her identity, neither were my siblings, so I acted like I didn’t care either.

My aunt was my only connection, but it felt too distant that way. I felt that if this is what I am, then why do I feel like a fraud or an outsider? It was really only because of the growing Native community at my school and our Aboriginal Student Success Officer that I was able to find my path and begin to meet with other First Nations, Métis, and Inuit students, and talk to elders.

I know I am not the only Native person who feels this way. I’m sure even outside of the issue of Native identity, many people feel the pain of unsure cultural identity. I wanted to make a game that explored that and maybe work through my own issues of belonging…

Read the entire interview here.

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Whiteness and Miscegenation: Ethnographic Notes, Social Classifications and Silences in the Brazilian Context

Posted in Anthropology, Articles, Brazil, Caribbean/Latin America, Media Archive on 2016-04-01 18:47Z by Steven

Whiteness and Miscegenation: Ethnographic Notes, Social Classifications and Silences in the Brazilian Context

Studi Culturali
Volume VII, Number 1, April 2010
pages 87-102
DOI: 10.1405/31883

Valeria Ribeiro Corossacz
Dipartimento di studi linguistici e culturali
Università degli studi di Modena e Reggio Emilia

This article presents some reflections from ongoing research on white upper-middle class men in Rio de Janeiro. The analysis of the construction of whiteness as an object of ethnographic enquiry permits us to consider the specificities and difficulties of ethnographic research on a category that in Euro-Western and Brazilian contexts represents the Self through which the social and cultural Other is defined. From these premises the article investigates what it means to classify him/herself and to be classified as white in Brazilian society, historically characterised by a valorisation of miscegenation and currently by a heated debate on anti-racist policies. The material presented shows how the invisibility of whiteness is associated on the one hand to the perception of the privilege connected to it, on the other hand to the pre-eminence of social class as an interpretive category.

Read or purchase the article here.

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Can a Dress Shirt Be Racist?

Posted in Anthropology, Articles, Media Archive on 2016-04-01 18:33Z by Steven

Can a Dress Shirt Be Racist?

Backchannel
2016-03-31

Moises Velasquez-Manoff


Illustration by Michael Marsicano

A startup finds that asking for certain data improves the fit of its clothes — and lands the company in a cultural minefield

In 2008, an entrepreneur named Seph Skerritt was frustrated with the way he shopped for clothes. Then a student at MIT’s Sloan School of Management, he chafed at the time wasted while trying on garments in stores. Often, he thought, you settled on an ill-fitting item just to get the drudgery over with.

While on an internship in Asia, Skerritt had encountered the effortless magic of having a tailor custom-fit your shirt. Why not improve on that concept, he wondered, with an online service that fitted your shirts by asking you questions, and then mailed you the garments?

He christened his company Proper Cloth. Naysayers told him that when customers input their measurements, they often made mistakes — the idea wouldn’t scale. But Skerritt thought that guessing, even if one’s guesses were occasionally off, was still preferable to the chaos and disappointment experienced in a physical store.

So he set about developing an algorithm that could customize your shirt without needing a tape measure. As a check against errors in customers’ reported measurements, he thought up a list of basic questions — height, weight, and so on — that could serve as indicators of shirt size. Then, using these questions, he made shirts for 30 guys who worked at the New York City tech incubator hosting his startup, called Dogpatch Labs.

When the volunteers tried on their shirts, Skerritt quickly saw what worked and what didn’t. Asking about waist size was insufficient, for example, because it gave no indication of the size of one’s midsection. So Skerritt added a question about how far one’s belly protruded. Other questions were too confusing, like one about how T-shirts fit around your chest and shoulders. Those queries were omitted.

He noticed an odd pattern. In that first batch of 30, the shirts fit best on testers who were Caucasians. They seemed to fit worse, in a predictable way, on people who weren’t Caucasian. All subjects of one ancestry — Asian, say — seemed to require the same general alterations. Skerritt noted the anomaly and added a question on what he called “ethnicity”: Asian, Black, Caucasian, Hispanic, or “I’m not sure.” The question, Skerritt says, has proven invaluable to sizing his customers’ shirts.

There’s no denying the satisfaction of a smartly tailored shirt. But with this one question, the once mundane world of dress shirts is now dabbling in a kind of racial profiling. Are we ready to dredge up centuries of racial strife, simply for a perfect fit?…

Read the entire article here.

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Obama praises wife Michelle’s curves as he sits down with prima ballerina Misty Copeland for interview about body image and growing up black in America

Posted in Articles, Arts, Barack Obama, Interviews, Media Archive, United States on 2016-04-01 17:51Z by Steven

Obama praises wife Michelle’s curves as he sits down with prima ballerina Misty Copeland for interview about body image and growing up black in America

The Daily Mail
London, United Kingdom
2016-03-14

  • The president and ballerina interviewed each other for TIME magazine
  • Copeland is the first ever African American to be named the principal dancer at the American Ballet Theater
  • Obama praised her for being a role model to his young daughters as she breaks barriers with her athletic body type
  • Copeland asked Obama for advice on how to stay humble and grounded when one reaches the top of their field

They have a shared history of multiracial families, being raised by single mothers and making it to the top position of their respective fields.

Now President Barack Obama and Prima Ballerina Misty Copeland are sharing a table, discussing their thoughts on women’s body image, affirmative action and growing up black in America.

Copeland, the first African American to be named the principal dancer at the American Ballet Theater, has been breaking barriers in the ballet world with her athletic body type.

And Obama revealed during the TIME interview that it was the likes of Copeland and wife Michelle that were acting as role models for his daughters as they learn the pressures women face today to ‘look a certain way’…

…Copeland said that growing up African American has definitely been a ‘huge obstacle’ but she credited for giving her ‘this fire’ that has made her one of the best in her field.

As both she and the president praised social media for inciting conversation on racism and discrimination in the country, Obama pointed out that more still had to be done…

Read the entire article here.

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Fear of Small Numbers: «Brown Babies» in Postwar Italy

Posted in Articles, Europe, History, Media Archive, Women on 2016-04-01 03:06Z by Steven

Fear of Small Numbers: «Brown Babies» in Postwar Italy

Contemporanea
Volume XVIII, Number 4, October-December 2015
pages 537-568
DOI: 10.1409/81438

Silvana Patriarca, Professor of History
Fordham University: The Jesuit University of New York

By drawing in an interdisciplinary fashion on a variety of different sources (some of them archives only recently made available to the public), the essay examines the way children of Italian women and non-white Allied soldiers born in Italy during WWII and in its immediate aftermath were racialized and treated in the postwar years. It shows significant continuities between pre- and postwar ideas about race and «racial hybrids» in various segments of the Italian population and argues that these children were considered a «problem» in spite of their small numbers (rather as happened in Germany and Great Britain in the same years). Because of their origin in «illegitimate» relations, either consensual or forced, and because of the color of their skin, they often encountered hostility and contempt and were seen as not really belonging in the national community even though they were almost always Italian citizens in virtue of ius soli. The Italian case, however, has its own specificity, namely the extent to which prominent figures of the Catholic world, at times former supporters of fascism, were involved in trying to «solve» this socalled «problem». The vicissitudes of these children show the need to further investigate the history of racism in the Italian democratic Republic.

Read or purchase the article here.

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Professor Silvana Patriarca’s Research on Race and Nation in Post World War II Italy

Posted in Articles, Europe, History, Media Archive, United States on 2016-04-01 02:52Z by Steven

Professor Silvana Patriarca’s Research on Race and Nation in Post World War II Italy

History at Fordham University
Fordham University: The Jesuit University of New York
2016-03-31

Aurora Pfefferkorn


Dr. Silvana Patriarca

Professor Silvana Patriarca is a faculty member in the Fordham University History department and specializes in modern Italian history. She is currently exploring the interaction between ideas of nation and “race” and working on a book about the history of racism in post-World War II Italy. Her new book will focus on “mixed-race” children born in Italy during the Allied occupation. These children were born to Italian mothers and non-white Allied soldiers, and were highly racialized in the post-war period.

Dr. Patriarca had initially started her research with a different topic in mind, but became interested in the post-war period when she discovered a lack of scholarship about race and racism in Italy after 1945. She began to focus on the experiences of mix-raced Italian children when she came across a 1961 Italian anthropometric study of a group of mixed-race children born during and right after WWII. The children had been measured in all sorts of invasive way to determine the physical, intellectual, and psychological traits that distinguished them, as if they were a group apart from a racial standpoint. “I found the book offensive and asked myself what do we know about the experiences of these children? I wondered what happened to them at that time and after [these studies were finished]?” Dr. Patriarca said. She saw these racial studies as linked to the large issue of Italian identity, the war experience, and the trauma of defeat. Fascist and racist ideas still circulated throughout Italy after World War II and permeated the scientific community especially. “Of course mentalities are slow to change,” Dr. Patriarca explained “It was troubling that many historians could still not see the intersection of nation and race in the postwar period and the lingering effects of fascism and racism on national identity.”…

Read the entire article here.

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